The North of Scotland Parkinson’s Research Podcast Series

Facial Physio - Dr C Terry & Dr F French, London Met. University and Patient Participant Neil Morrison

This tremendous research collaboration at the London Metropolitan University aims to tackle one of the most distressing but neglected symptoms of Parkinson's - Facial Masking. Dr Cassie Terry, Reader in Protein Pathology and Dr Fiona French, Associate Professor of Computing and Digital Media, are developing a virtual reality application to rehabilitate facial muscles and help bring back the ability of a patient's face to reflect their feelings and personality. NoSPRIG member Neil Morrison, diagnosed with Parkison's in 2018, has been involved since the start. 
 
email: C.terry@londonmet.ac.uk 
Our research centre: https://www.londonmet.ac.uk/research/centres-groups-and-units/centre-for-health--life-sciences-research/

Why is depression so common in Parkinson’s and how best to manage it.

Welcome to part 2 of our special two part podcast to mark World Mental Health Day 2023 on 10th October. Julie Jones and Neil Morrison from NoSPRIG will be joined by Senior Clinical Neuropsychologist Dr Jennifer Foley and mental health specialist Parkinson’s Nurse Emma Edwards  
In episode 2, we’ll be taking an in-depth look at depression, another common mental health issue facing people with Parkinson’s. 
 
Dr Jennifer Foley is a senior clinical neuropsychologist at the National Hospital for Neurology and Neurosurgery and Honorary Lecturer at UCL Queen Square Institute of Neurology in London. She has a specific interest in patients with movement disorders.  She is lead of the Parkinson’s UK Excellence Network for Mental Health and is involved in research trials of new treatments for the cognitive and emotional symptoms of Parkinson’s disease.
Emma Edwards is a mental health nurse by background but has worked in various roles in psychiatry before joining and the Cornwall Parkinson’s nurse team in 2010. She moved to Plymouth to work as a PD nurse in 2019. Her special interest in Parkinson’s is improving all things mental health for her patients. Emma is currently seconded to the Suicide prevention training team, to improve her knowledge in this area, which she feels is a very much  underserved area in Parkinson’s research in the UK.
 
Get support for your mental health:
People with Parkinson's tell us that they feel their mental health issues can make their physical symptoms of Parkinson's feel worse, and recent research has proven this. That's why it's important to talk to your GP, specialist or Parkinson's nurse about all of your Parkinson's symptoms, whether physical or mental. 
As discussed in the pod, talking to others about anxiety, depression or your mental health has been shown to be beneficial.  You can also speak to people on Parkinsons UK online forum or via Parkinson’s UK local support groups across the country, including groups specifically for people of working age. Local groups are a great way to meet other people with Parkinson's in your area, find out more about the condition and get support in a friendly and welcoming environment.
Parkinson's UK also have a helpline which is a free confidential service providing support to anyone affected by Parkinson's. You can reach the Helpline on 0808 800 0303.
Our trained advisers, including specialist Parkinson's nurses, can provide information and advice about all aspects of living with Parkinson's.
You can also contact:
the Mind Infoline on 0300 123 3393 for more information on mental health issues, which is open 9am to 6pm, from Monday to Friday.
Samaritans on 116 123 at any time for free. 
 Taking part in research was mentioned within the podcast.  search for research opportunities on Take Part 
 
Two- current studies are investigating the treatment of Parkinson’s hallucinations or delusions:
CAN-PDP: Cannabidiol (CBD) for people with Parkinson's who experience hallucinations or delusions
TOP HAT: TOP HAT: Trial of a licensed drug as a treatment for hallucinations
Mental health and Parkinson’s
Find out more about mental health and Parkinson’s.
 
 
 

Anxiety in Parkinson’s - what do we know, what can we learn from research, and practical tips for dealing with the problem.

Welcome to part 1 of our special two part podcast to mark World Mental Health Day 2023 on 10th October. Julie Jones and Neil Morrison from NoSPRIG will be joined by Senior Clinical Neuropsychologist Dr Jennifer Foley and mental health specialist Parkinson’s Nurse Emma Edwards  
In episode 1, we’ll be taking an in-depth look at anxiety, one of the most common mental health issues facing people with Parkinson’s. 
Dr Jennifer Foley is a senior clinical neuropsychologist at the National Hospital for Neurology and Neurosurgery and Honorary Lecturer at UCL Queen Square Institute of Neurology in London. She has a specific interest in patients with movement disorders.  She is lead of the Parkinson’s UK Excellence Network for Mental Health and is involved in research trials of new treatments for the cognitive and emotional symptoms of Parkinson’s disease.
Emma Edwards is a mental health nurse by background but has worked in various roles in Psychiatry, before joining and the Cornwall Parkinson’s nurse team in 2010. She moved to Plymouth to work as a PD nurse in 2019. Her special interest in Parkinson’s is improving all things mental health for her patients. Emma is currently seconded to the Suicide prevention training team, to improve her knowledge in this area, which she feels is very much underserved in Parkinson’s research in the UK.
 
Get support for your mental health:
People with Parkinson's tell us that they feel their mental health issues can make their physical symptoms of Parkinson's feel worse, and recent research has proven this. That's why it's important to talk to your GP, specialist or Parkinson's nurse about all of your Parkinson's symptoms, whether physical or mental. 
As discussed in the pod, talking to others about anxiety, depression or your mental health has been shown to be beneficial.  You can also speak to people on Parkinsons UK online forum or via Parkinson’s UK local support groups across the country, including groups specifically for people of working age. Local groups are a great way to meet other people with Parkinson's in your area, find out more about the condition and get support in a friendly and welcoming environment.
Parkinson's UK also have a helpline which is a free confidential service providing support to anyone affected by Parkinson's. You can reach the Helpline on 0808 800 0303.
Our trained advisers, including specialist Parkinson's nurses, can provide information and advice about all aspects of living with Parkinson's.
You can also contact:
the Mind Infoline on 0300 123 3393 for more information on mental health issues, which is open 9am to 6pm, from Monday to Friday.
Samaritans on 116 123 at any time for free. 
 Taking part in research was mentioned within the podcast.  search for research opportunities on Take Part Hub
Two- current studies are investigating the treatment of Parkinson’s hallucinations or delusions:
CAN-PDP: Cannabidiol (CBD) for people with Parkinson's who experience hallucinations or delusions
TOP HAT: TOP HAT: Trial of a licensed drug as a treatment for hallucinations
Mental health and Parkinson’s
Find out more about mental health and Parkinson’s.

Apathy with Dr Tom Gilbertson, Senior Clinical Lecturer and Honorary Consultant Neurologist, University of Dundee.

This episode focuses on the remarkable research being done by Dr Tom Gilbertson in Dundee, that suggests people with Parkinson’s may be able to reprogram new pathways in their brain to overcome the common symptom of apathy. He also describes his future work and the belief that non-invasive, reversible ultrasound therapies may one day be capable of modifying the function of neurons to provide symptom control.
 

Dr Angus Macleod, Honorary Consultant Neurologist and Senior Clinical Lecturer, University of Aberdeen.

Dr Angus Macleod is a Honorary Consultant Neurologist with NHS Grampian specialising in movement disorders inc. Parkinson’s and also a Senior Lecturer at the School of Medicine at the University of Aberdeen.
This podcast focuses on his own research and also his views on the most promising areas of research currently underway. 
The North of Scotland Parkinsons research interest groups:  https://www.nosprig.org/
Research groups nationally:  https://www.parkinsons.org.uk/research/local-parkinsons-research-interest-groups
Parkinson’s UK Scotland:  https://www.parkinsons.org.uk/about-us/parkinsons-uk-scotland
 

Dr Rachel Hardie, N. Scotland Research Ethics Servie & Dr Gillian Lyon, Research & Development Team, University of Aberdeen - Research Ethics

With the help of Drs Rachel Hardie and Gillian Lyon, we examine Research Ethics - the standard of conduct ensuring scientific integrity and study participants' safety. We'll find out about the process of getting approval for a research project and what patients and the public considering taking part in research should be looking out for before signing up.
 

Dr Will Young, Assoc. Professor in Rehabilitation Psychology, University of Exeter - Freezing of Gait

In this episode we cover everything from dancing the Cha-cha to virtual reality, as we hear the innovative lengths Dr Will Young and his team go to in their research into the psychology behind freezing of gait and their development of strategies to overcome it.
 

Amelia Hursey, Research Manager, Parkinson's Europe - Patient and Public Participation in Research

Without the generosity of the many people who give their time towards participating in research there would be no progress in our quest to find new therapies and hopefully one day, a cure for Parkinson's. Amelia Hursey has worked in the public and charity sectors for 12 years specialising in Patient and Public Participation. Now Research Manager for Parkinson's Europe, we talk to her about the challenges of recruiting people for this vital role. 
 
1) Parkinson's Europe website: https://parkinsonseurope.org/
2) Parkinson's Europe Engagement Network: https://parkinsonseurope.org/connect-with-us/join-our-engagement-network/
 
 
 

Richelle Flanagan, Dietitian with Young Onset Parkinson's Disease, Diet and Parkinson's

In this episode we are delighted to have the opportunity to discuss the latest thinking on Diet and Parkinson's with someone uniquely placed to do so from both a professional and a personal perspective.  Richelle Flanagan is not only a leading dietician in Ireland with nearly two decades of experience, but she also lives with Parkinson's Disease having been diagnosed seven years ago when she was expecting her second child. 

Dr Kathryn Bowles, Gene Researcher, UK Dementia Research Institute, Edinburgh and leader of the Bowles Lab.

Dr Kathryn Bowles explains her fascinating research into a little known gene that is thought to help protect the brain. It is hoped that discovering how this process works will provide vital new knowledge as to why some people develop Parkinson’s and others don’t. Kat also talks Julie and Helga through the complex world of genetic research, how it has developed over recent years, and why it can take so long to see progress. 
 
 www.bowleslab.co.uk
 
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9284779/pdf/13024_2022_Article_551.pdf